The Brockman Foundation Medical Research Grant Program has provided funding in support of the CureFA Foundation, an American organisation dedicated to scientific research, building scientific infrastructure, and increasing information availability to the community working towards a cure for Friedreich’s Ataxia (FA).
FA is a debilitating, life-shortening, degenerative, neuro-muscular disorder. Neurological cells degenerate in FA patients over time. This results in loss of feeling and control of arms and legs (ataxia); aggressive scoliosis; hypertrophic cardiomyopathy and arrhythmias; fatigue, energy deprivation and muscle loss; diabetes; vision impairment, hearing loss and slurred speech.
The CureFA Foundation funds scientific projects and industry partnerships that leverage new technologies for the treatment and cure of FA.
A substantial amount of the CureFA Foundation’s resources are directed to FA research initiatives and projects through the Friedreich’s Ataxia Research Alliance (FARA), which has a widely respected Scientific Advisory Board, Collaborative Clinical Research Network and Executive Leadership built over many years.
- Grant Use: Research Initiatives
Most recently, grants were made to principal investigator Dr. Hugo Bellen of the Baylor College of Medicine in Houston, Texas, for his continuing research into FA, and to the University of Minnesota for an imaging study that will potentially be used as an imaging biomarker.
Both grants were made possible by the support provided by the Brockman Medical Research Foundation.